Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | Copyright | CDE Files |
|---|---|---|---|---|---|---|
| University of Michigan Sedation Scale (UMSS) | The University of Michigan Sedation Scale (UMSS) measures sedation based on clinician observation. |
Supplemental | Sedation | English | No |
|
| UCLA PTSD Reaction Index (UCLA PTSD-RI) | The UCLA PTSD Reaction Index (UCLA PTSD-RI) measures trauma exposure and PTSD symptoms in children and adolescents. |
Supplemental | Trauma/PTSD | English | Yes |
|
| Trinity Amputation and Prosthesis Experience Scales Revised (TAPES-R) | The Trinity Amputation and Prosthesis Experience Scales Revised (TAPES-R) measures the experience of having a prosthesis. |
Supplemental | Amputation and Limb Loss | English | No |
|
| Stoplight Pain Scale | The Stoplight Pain Scale measures pain intensity in pediatric patients. |
Supplemental | Pain Intensity | English | No |
|
| Sickle Cell Stress Scale | The Sickle Cell Stress Scale measures stress in adults with sickle cell. |
Supplemental | Sickle Cell | English | No |
|
| Sickle Cell Disease Heath-Related Stigma Scale | The Sickle Cell Disease Heath-Related Stigma Scale measures stigma in people with sickle cell. |
Supplemental | Sickle Cell | English | No |
|
| Screening To Brief Intervention (S2BI) | The Screening To Brief Intervention (S2BI) measures substance use. |
Supplemental | Substance Use | English | No |
|
| Richmond Agitation Sedation Scale (RASS) | The Richmond Agitation Sedation Scale (RASS) measures sedation and agitation in critical care. |
Supplemental | Sedation | English | No |
|
| PROMIS Physical Function SF 8c | The PROMIS Physical Function SF 8c modified measures physical functioning adult patients. |
Supplemental | Physical Functioning | English | No |
|
| PROMIS Pediatric Psychological Stress Experiences | The PROMIS Pediatric Psychological Stress Experiences measures stress in children. |
Supplemental | Stress | English | No |
|
| PROMIS Pediatric Sleep Problems | The PROMIS Pediatric Sleep Problems measures sleep in children - 4a early childhood ages 1 to 7 (ec), 8a early childhood sleep problems ages 1 to 7 (ec), 8a parent proxy sleep disturbance ages 1 to 7 (proxy), 8a self report ages 8 to 17 (self). |
Core - Pediatric | Sleep | English, Spanish, Arabic, Somali | No |
|
| PROMIS Pediatric Sleep Problems | The PROMIS Pediatric Sleep Problems measures sleep in children - 4a early childhood ages 1 to 7 (ec), 8a early childhood sleep problems ages 1 to 7 (ec), 8a parent proxy sleep disturbance ages 1 to 7 (proxy), 8a self report ages 8 to 17 (self). |
Core - Pediatric | Sleep | English, Spanish, Arabic, Somali | No |
|
| PROMIS Pediatric Sleep Problems | The PROMIS Pediatric Sleep Problems measures sleep in children - 4a early childhood ages 1 to 7 (ec), 8a early childhood sleep problems ages 1 to 7 (ec), 8a parent proxy sleep disturbance ages 1 to 7 (proxy), 8a self report ages 8 to 17 (self). |
Core - Pediatric | Sleep | English, Spanish, Arabic, Somali | No | |
| PROMIS Pediatric Sleep Problems | The PROMIS Pediatric Sleep Problems measures sleep in children - 4a early childhood ages 1 to 7 (ec), 8a early childhood sleep problems ages 1 to 7 (ec), 8a parent proxy sleep disturbance ages 1 to 7 (proxy), 8a self report ages 8 to 17 (self). |
Core - Pediatric | Sleep | English, Spanish, Arabic, Somali | No | |
| PROMIS Early Childhood Global Health 8a | The PROMIS Early Childhood Global Health 8a measures overall health in children age 1 to 5. |
Supplemental | Physical Functioning | English, Spanish, Arabic | No |
|
| PROMIS Early Childhood Global Health 8a | The PROMIS Early Childhood Global Health 8a measures overall health in children age 1 to 5. |
Supplemental | Physical Functioning | English, Spanish, Arabic | No |
|
| PROMIS Early Childhood Global Health 8a | The PROMIS Early Childhood Global Health 8a measures overall health in children age 1 to 5. |
Supplemental | Physical Functioning | English, Spanish, Arabic | No | |
| PROMIS Pediatric Depressive Symptoms | The PROMIS Pediatric Depressive Symptoms measures depression in children - 4a early childhood ages 1 to 5 (ec), 6a later childhood parent proxy ages 6 and 7 (proxy), 8a self report ages 8 to 17. |
Core - Pediatric | Depression | English, Spanish, Arabic, Somali | No |
|
| PROMIS Pediatric Depressive Symptoms | The PROMIS Pediatric Depressive Symptoms measures depression in children - 4a early childhood ages 1 to 5 (ec), 6a later childhood parent proxy ages 6 and 7 (proxy), 8a self report ages 8 to 17. |
Core - Pediatric | Depression | English, Spanish, Arabic, Somali | No |
|
| PROMIS Pediatric Depressive Symptoms | The PROMIS Pediatric Depressive Symptoms measures depression in children - 4a early childhood ages 1 to 5 (ec), 6a later childhood parent proxy ages 6 and 7 (proxy), 8a self report ages 8 to 17. |
Core - Pediatric | Depression | English, Spanish, Arabic, Somali | No | |
| PROMIS Pediatric Depressive Symptoms | The PROMIS Pediatric Depressive Symptoms measures depression in children - 4a early childhood ages 1 to 5 (ec), 6a later childhood parent proxy ages 6 and 7 (proxy), 8a self report ages 8 to 17. |
Core - Pediatric | Depression | English, Spanish, Arabic, Somali | No | |
| PROMIS Pediatric Anxiety 8a | The PROMIS Pediatric Anxiety 8a measures anxiety in children - early childhood ages 1 to 5 (ec), later childhood parent proxy ages 6 and 7 (proxy), self report ages 8 to 17. |
Anxiety | English, Spanish, Somali, Arabic | No |
|
|
| PROMIS Pediatric Anxiety 8a | The PROMIS Pediatric Anxiety 8a measures anxiety in children - early childhood ages 1 to 5 (ec), later childhood parent proxy ages 6 and 7 (proxy), self report ages 8 to 17. |
Anxiety | English, Spanish, Somali, Arabic | No |
|
|
| PROMIS Pediatric Anxiety 8a | The PROMIS Pediatric Anxiety 8a measures anxiety in children - early childhood ages 1 to 5 (ec), later childhood parent proxy ages 6 and 7 (proxy), self report ages 8 to 17. |
Anxiety | English, Spanish, Somali, Arabic | No | ||
| PROMIS Pediatric Anxiety 8a | The PROMIS Pediatric Anxiety 8a measures anxiety in children - early childhood ages 1 to 5 (ec), later childhood parent proxy ages 6 and 7 (proxy), self report ages 8 to 17. |
Anxiety | English, Spanish, Somali, Arabic | No |
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