Resources
Resources
HEAL-funded researchers are generating massive amounts of data toward addressing the intertwined public health challenges of undertreated pain, and opioid misuse, addiction, and overdose. The initiative has set up a cloud-based platform and user-friendly resources to optimize data analysis and sharing.
Pain and addiction are conditions shaped by biology, psychology, social and cultural contexts, and environment. People who have lived and living experience (PWLE) with these conditions bring an important perspective to virtually all aspects of research. The Patient and Community Engagement Tip Sheets and accompanying worksheets are designed to equip researchers with tools to engage with PWLE and community members effectively. Download the tip sheets to learn how to plan for patient and community engagement, best practices for fostering genuine relationships, and how to disseminate findings in a meaningful and impactful way.
- Patient and Community Engagement in Planning HEAL-Funded Research
- Patient and Community Engagement in Conducting HEAL-Funded Research
- Patient and Community Engagement in Disseminating HEAL-Funded Research
- Identifying Partners to Engage Worksheet
- Anticipating Barriers to Engagement with PWLE and Communities Worksheet
- Research Planning
- – Patient-Centered Outcomes Research Institute (PCORI)
- – PCORI
- – PCORI
- – PCORI
- – PCORI
- – U.S. Food and Drug Administration
- – PCORI
- Conducting Research
- – PCORI
- – PCORI
- Dissemination
- Plain Language: Getting Started or Brushing Up – NIH
- – National Institute on Drug Abuse
- Person-first and Destigmatizing Language – NIH
- Measuring and Assessing Patient and Community Engagement
- Measures for Multiple Audiences
- – National Academy of Medicine
- – UNM College of Population Health, Center for Participatory Research
- – Centers for Disease Control and Prevention, Prevention Research Centers
- – University of Warwick
- Measures for Researcher Experience
- – RAND Corporation
- – National Cancer Institute
- – UNM College of Population Health, Center for Participatory Research
- – PCORI
- Measures for Research Partner Experience
- – Johns Hopkins University Press
- – New York University
- Measures for Coalitions/Organization Members
- – University of Nebraska
- Measures for Multiple Audiences
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