Common Data Elements (CDEs) Repository

Helping to End Addiction Long-term® Initiative

Common Data Elements (CDEs) Repository

The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.

HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.

The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.

Instrument Name Description CDE Category Research Topic File Languages Copyright CDE Files
Self-Efficacy for Managing Chronic Conditions for Managing Medications and Treatment SF 8a

The Self-Efficacy for Managing Chronic Conditions for Managing Medications and Treatment SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing medications and treatment.

Supplemental Self-Efficacy English
SF 8 Health Survey

The SF 8 Health Survey instrument measures health-related quality of life over the past 4 weeks.

Quality of Life English
Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 8a

The Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing social interactions.

Supplemental Self-Efficacy English
Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 4a

The Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 4a is a 4-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing social interactions.

Self-Efficacy English
Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 8a

The Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing symptoms.

Supplemental Self-Efficacy English
Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 4a

The Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 4a is a 4-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing symptoms.

Supplemental Self-Efficacy English
Self-Efficacy for Managing Chronic Conditions for Managing Emotions SF 8a

The Self-Efficacy for Managing Chronic Conditions for Managing Emotions SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing emotions.

Supplemental Self-Efficacy English
Self-Efficacy for Managing Chronic Conditions for Managing Emotions 4a

The Self-Efficacy for Managing Chronic Conditions for Managing Emotions SF 4a is a 4-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing emotions.

Supplemental Self-Efficacy English
Epworth Sleepiness Scale (ESS)

The Epworth Sleepiness Scale (ESS) is a specialized, validated sleep questionnaire containing 8 items that ask for self-reported disclosure of the expectation of "dozing" in a variety of situations.

Supplemental Sleep English
PedsQL Sickle Cell Disease Module - Teen

The PedsQL Sickle Cell Disease Teen Report Module is a brief, valid, reliable self- or proxy-administered questionnaire that captures health-related quality of life (HRQOL) in pediatric patients with sickle cell disease.

Supplemental Sickle Cell English
Pain Self-Efficacy Questionnaire 10 (PSEQ 10)

The Pain Self-Efficacy Questionnaire (PSEQ) is a 10-item questionnaire to assess the confidence people with ongoing pain have in performing activities while in pain.

Supplemental Self-Efficacy English
Pain Self-Efficacy Questionnaire 2 (PSEQ 2)

The Pain Self-Efficacy Questionnaire (PSEQ) is a 2-item questionnaire to assess the confidence people with ongoing pain have in performing activities while in pain.

Self-Efficacy English
World Health Organization Quality of Life Brief (WHOQOL-BREF)

The World Health Organization Quality of Life Brief with Demographics and Administration Questions (WHOQOL-BREF) assesses quality of life (QOL) within the context of an individual's culture, value systems, personal goals, standards and concerns.

Supplemental Quality of Life English
Norfolk Quality of Life-Diabetic Neuropathy (QOL-DN)

The Norfolk Quality of Life-Diabetic Neuropathy (QOL-DN) questionnaire is an instrument to assess QOL in diabetic polyneuropathy.

Supplemental Quality of Life English
PROMIS Psychosocial Illness Impact Positive 8a

The PROMIS Psychosocial Illness Impact Positive 8a assesses positive psychosocial (emotional and social) outcomes of illness.

Supplemental Psychosocial Impact English
PROMIS Psychosocial Illness Impact Negative 8a

The PROMIS Psychosocial Illness Impact Negative 8a assesses the direct negative psychosocial effect of an illness, distinct from general emotional distress.

Supplemental Psychosocial Impact English
Self Compassion Scale Short Form (SCS SF)

The Self Compassion Scale - Short Form (SCS-SF) is a 12-item self-report measure used by adults to measure their capacity for self-compassion (the ability to hold one's feelings of suffering with a sense of warmth, connection and concern).

Supplemental Protective Factors English, Spanish
Self Compassion Scale Short Form (SCS SF)

The Self Compassion Scale - Short Form (SCS-SF) is a 12-item self-report measure used by adults to measure their capacity for self-compassion (the ability to hold one's feelings of suffering with a sense of warmth, connection and concern).

Supplemental Protective Factors English, Spanish
PROMIS Positive Affect 15a

The PROMIS Positive Affect 15a is a 15-item tool to assess happiness, serenity, and cognitive engagement of the person.

Supplemental Protective Factors English
Pain Outcomes Questionnaire (POQ)

The Pain Outcomes Questionnaire (POQ) is a multidimensional treatment outcomes measure that assesses specific aspects of pain syndromes.

Supplemental Satisfaction English
Mobile Application Rating Scale (MARS)

The Mobile Application Rating Scale (MARS) evaluates the quality of mobile health applications.

Supplemental Satisfaction English
Client Satisfaction Questionnaire (CSQ)

The Client Satisfaction Questionnaire (CSQ) assesses consumer satisfaction with health and human services including governmental and public benefit programs and services.

Supplemental Satisfaction English
Pain Resilience Scale

The Pain Resilience Scale measures cognitive/affective positivity and behavioral perseverance during exposure to noxious stimuli.

Supplemental Resilience English, Spanish
Pain Resilience Scale

The Pain Resilience Scale measures cognitive/affective positivity and behavioral perseverance during exposure to noxious stimuli.

Supplemental Resilience English, Spanish
Connor-Davidson Resilience Scale 25 (CD RISC 25)

The Connor-Davidson Resilience scale (CD RISC 25) comprises of 25 items, each rated on a 5-point scale (0-4), with higher scores reflecting greater resilience.

Supplemental Resilience English

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