Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | Copyright | CDE Files |
|---|---|---|---|---|---|---|
| Self-Efficacy for Managing Chronic Conditions for Managing Medications and Treatment SF 8a | The Self-Efficacy for Managing Chronic Conditions for Managing Medications and Treatment SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing medications and treatment. |
Supplemental | Self-Efficacy | English | No | |
| SF 8 Health Survey | The SF 8 Health Survey instrument measures health-related quality of life over the past 4 weeks. |
Quality of Life | English | Yes |
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| Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 8a | The Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing social interactions. |
Supplemental | Self-Efficacy | English | No | |
| Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 4a | The Self-Efficacy for Managing Chronic Conditions for Managing Social Interactions SF 4a is a 4-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing social interactions. |
Self-Efficacy | English | No | ||
| Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 8a | The Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing symptoms. |
Supplemental | Self-Efficacy | English | No |
|
| Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 4a | The Self-Efficacy for Managing Chronic Conditions for Managing Symptoms SF 4a is a 4-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing symptoms. |
Supplemental | Self-Efficacy | English | No |
|
| Self-Efficacy for Managing Chronic Conditions for Managing Emotions SF 8a | The Self-Efficacy for Managing Chronic Conditions for Managing Emotions SF 8a is an 8-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing emotions. |
Supplemental | Self-Efficacy | English | No |
|
| Self-Efficacy for Managing Chronic Conditions for Managing Emotions 4a | The Self-Efficacy for Managing Chronic Conditions for Managing Emotions SF 4a is a 4-item, self-report measure assessing a person's self-efficacy with a chronic condition, in relation to managing emotions. |
Supplemental | Self-Efficacy | English | No |
|
| Epworth Sleepiness Scale (ESS) | The Epworth Sleepiness Scale (ESS) is a specialized, validated sleep questionnaire containing 8 items that ask for self-reported disclosure of the expectation of "dozing" in a variety of situations. |
Supplemental | Sleep | English | Yes |
|
| PedsQL Sickle Cell Disease Module - Teen | The PedsQL Sickle Cell Disease Teen Report Module is a brief, valid, reliable self- or proxy-administered questionnaire that captures health-related quality of life (HRQOL) in pediatric patients with sickle cell disease. |
Supplemental | Sickle Cell | English | Yes | |
| Pain Self-Efficacy Questionnaire 10 (PSEQ 10) | The Pain Self-Efficacy Questionnaire (PSEQ) is a 10-item questionnaire to assess the confidence people with ongoing pain have in performing activities while in pain. |
Supplemental | Self-Efficacy | English | No |
|
| Pain Self-Efficacy Questionnaire 2 (PSEQ 2) | The Pain Self-Efficacy Questionnaire (PSEQ) is a 2-item questionnaire to assess the confidence people with ongoing pain have in performing activities while in pain. |
Self-Efficacy | English | No |
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|
| World Health Organization Quality of Life Brief (WHOQOL-BREF) | The World Health Organization Quality of Life Brief with Demographics and Administration Questions (WHOQOL-BREF) assesses quality of life (QOL) within the context of an individual's culture, value systems, personal goals, standards and concerns. |
Supplemental | Quality of Life | English | No |
|
| Norfolk Quality of Life-Diabetic Neuropathy (QOL-DN) | The Norfolk Quality of Life-Diabetic Neuropathy (QOL-DN) questionnaire is an instrument to assess QOL in diabetic polyneuropathy. |
Supplemental | Quality of Life | English | Yes |
|
| PROMIS Psychosocial Illness Impact Positive 8a | The PROMIS Psychosocial Illness Impact Positive 8a assesses positive psychosocial (emotional and social) outcomes of illness. |
Supplemental | Psychosocial Impact | English | No | |
| PROMIS Psychosocial Illness Impact Negative 8a | The PROMIS Psychosocial Illness Impact Negative 8a assesses the direct negative psychosocial effect of an illness, distinct from general emotional distress. |
Supplemental | Psychosocial Impact | English | No | |
| Self Compassion Scale Short Form (SCS SF) | The Self Compassion Scale - Short Form (SCS-SF) is a 12-item self-report measure used by adults to measure their capacity for self-compassion (the ability to hold one's feelings of suffering with a sense of warmth, connection and concern). |
Supplemental | Protective Factors | English, Spanish | No |
|
| Self Compassion Scale Short Form (SCS SF) | The Self Compassion Scale - Short Form (SCS-SF) is a 12-item self-report measure used by adults to measure their capacity for self-compassion (the ability to hold one's feelings of suffering with a sense of warmth, connection and concern). |
Supplemental | Protective Factors | English, Spanish | No |
|
| PROMIS Positive Affect 15a | The PROMIS Positive Affect 15a is a 15-item tool to assess happiness, serenity, and cognitive engagement of the person. |
Supplemental | Protective Factors | English | No |
|
| Pain Outcomes Questionnaire (POQ) | The Pain Outcomes Questionnaire (POQ) is a multidimensional treatment outcomes measure that assesses specific aspects of pain syndromes. |
Supplemental | Satisfaction | English | Yes |
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| Mobile Application Rating Scale (MARS) | The Mobile Application Rating Scale (MARS) evaluates the quality of mobile health applications. |
Supplemental | Satisfaction | English | No |
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| Client Satisfaction Questionnaire (CSQ) | The Client Satisfaction Questionnaire (CSQ) assesses consumer satisfaction with health and human services including governmental and public benefit programs and services. |
Supplemental | Satisfaction | English | Yes |
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| Pain Resilience Scale | The Pain Resilience Scale measures cognitive/affective positivity and behavioral perseverance during exposure to noxious stimuli. |
Supplemental | Resilience | English, Spanish | No |
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| Pain Resilience Scale | The Pain Resilience Scale measures cognitive/affective positivity and behavioral perseverance during exposure to noxious stimuli. |
Supplemental | Resilience | English, Spanish | No |
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| Connor-Davidson Resilience Scale 25 (CD RISC 25) | The Connor-Davidson Resilience scale (CD RISC 25) comprises of 25 items, each rated on a 5-point scale (0-4), with higher scores reflecting greater resilience. |
Supplemental | Resilience | English | Yes |
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