Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | Copyright | CDE Files |
|---|---|---|---|---|---|---|
| Connor Davidson Resilience Scale 2 item (CD RISC 2) | The Connor Davidson Resilience Scale 2 item (CD RISC 2) comprises of 2 items, each rated on a 5-point scale (0-4), with higher scores reflecting greater resilience. |
Supplemental | Resilience | English | Yes |
|
| Opening Minds Stigma Scale for Health Care Providers (OMS-HC) | The Opening Minds Stigma Scale for Health Care Providers (OMS-HC) was developed to measure stigma in Health Care Providers. |
Supplemental | Questions for Providers | English | No |
|
| Parent Risk and Impact Screening Measure (PRISM) | The Parent Risk and Impact Screening Measure (PRISM) consists of 12 items intended to assess parents' reports of their own stress, health, psychosocial functioning, and disruption in activities due to their child's pain and related disability. |
Supplemental | Questions for Parents | English | No |
|
| Parental Psychological Flexibility (PPFQ 10) | The Parental Psychological Flexibility (PPFQ 10) questionnaire is a parent-report measure designed to assess psychological flexibility among parents of pre-adolescents and adolescents (aged 10-18 years). |
Supplemental | Questions for Parents | English | No |
|
| Domain Specific Life Satisfaction Ages 18+ Fixed Form | The Domain Specific Life Satisfaction Ages 18+ Fixed Form assesses one's cognitive evaluation of life experiences and is concerned with whether people like their lives or not. |
Supplemental | Satisfaction | English | No |
|
| Pediatric Demographics | The Pediatric Demographics are a set of demographic questions to gain background information on pediatric participants. |
Core - Pediatric | Demographics | English, Spanish | No |
|
| Pediatric Demographics | The Pediatric Demographics are a set of demographic questions to gain background information on pediatric participants. |
Core - Pediatric | Demographics | English, Spanish | No |
|
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes |
|
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 6 (PCS-6) | The Pain Catastrophizing Scale 6 (PCS-6) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Core - Adult | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes |
|
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale 13 (PCS-13) | The Pain Catastrophizing Scale 13 (PCS-13) measures the state of mind of a participant in pain that encompasses the different perspectives on worrying. |
Supplemental | Pain Catastrophizing | English, Spanish, Japanese, Korean, Simplified Chinese, Swedish, Traditional Chinese | Yes | |
| Pain Catastrophizing Scale Parent (PCS-P) | The Pain Catastrophizing Scale Parent (PCS-P) measures emotional responses of parents when their child has pain. |
Core - Pediatric | Pain Catastrophizing | English, Spanish | Yes |
|
| Pain Catastrophizing Scale Parent (PCS-P) | The Pain Catastrophizing Scale Parent (PCS-P) measures emotional responses of parents when their child has pain. |
Core - Pediatric | Pain Catastrophizing | English, Spanish | Yes |
|
| Pain Catastrophizing Scale Child (PCS-C) | The Pain Catastrophizing Scale Child (PCS-C) measures emotional responses to pain in children. |
Core - Pediatric | Pain Catastrophizing | English, Spanish | Yes |
|
| Pain Catastrophizing Scale Child (PCS-C) | The Pain Catastrophizing Scale Child (PCS-C) measures emotional responses to pain in children. |
Core - Pediatric | Pain Catastrophizing | English, Spanish | Yes |
|
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