Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | Copyright | CDE Files |
|---|---|---|---|---|---|---|
| Opioid Milligrams of Morphine (MME) | The Opioid MME is the amount of milligrams of morphine an opioid dose is equal to when prescribed. Calculating MME accounts for differences in opioid drug type and strength. |
Core - Adult & Pediatric | Opioids | English | No |
|
| NIDA-Modified ASSIST | The NIDA-Modified ASSIST is a self-report measurement to assess participants for risky substance use. |
Core - Pediatric | Substance Use | English, Spanish | No |
|
| NIDA-Modified ASSIST | The NIDA-Modified ASSIST is a self-report measurement to assess participants for risky substance use. |
Core - Pediatric | Substance Use | English, Spanish | No |
|
| Generalized Anxiety Disorder 7 (GAD 7) | The Generalized Anxiety Disorder 7 (GAD-7) is an initial screening tool for generalized anxiety disorder. |
Supplemental | Anxiety | English, Spanish, Arabic, Somali, Swedish | No |
|
| Generalized Anxiety Disorder 7 (GAD 7) | The Generalized Anxiety Disorder 7 (GAD-7) is an initial screening tool for generalized anxiety disorder. |
Supplemental | Anxiety | English, Spanish, Arabic, Somali, Swedish | No | |
| Generalized Anxiety Disorder 7 (GAD 7) | The Generalized Anxiety Disorder 7 (GAD-7) is an initial screening tool for generalized anxiety disorder. |
Supplemental | Anxiety | English, Spanish, Arabic, Somali, Swedish | No | |
| Generalized Anxiety Disorder 7 (GAD 7) | The Generalized Anxiety Disorder 7 (GAD-7) is an initial screening tool for generalized anxiety disorder. |
Supplemental | Anxiety | English, Spanish, Arabic, Somali, Swedish | No | |
| Generalized Anxiety Disorder 7 (GAD 7) | The Generalized Anxiety Disorder 7 (GAD-7) is an initial screening tool for generalized anxiety disorder. |
Supplemental | Anxiety | English, Spanish, Arabic, Somali, Swedish | No | |
| Generalized Anxiety Disorder 2 (GAD 2) | The Generalized Anxiety Disorder 2 (GAD-2) is an initial screening tool for generalized anxiety disorder. |
Core - Adult & Pediatric | Anxiety | English, Spanish, Arabic, Polish, Somali, Swedish | No |
|
| Generalized Anxiety Disorder 2 (GAD 2) | The Generalized Anxiety Disorder 2 (GAD-2) is an initial screening tool for generalized anxiety disorder. |
Core - Adult & Pediatric | Anxiety | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Generalized Anxiety Disorder 2 (GAD 2) | The Generalized Anxiety Disorder 2 (GAD-2) is an initial screening tool for generalized anxiety disorder. |
Core - Adult & Pediatric | Anxiety | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Generalized Anxiety Disorder 2 (GAD 2) | The Generalized Anxiety Disorder 2 (GAD-2) is an initial screening tool for generalized anxiety disorder. |
Core - Adult & Pediatric | Anxiety | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Generalized Anxiety Disorder 2 (GAD 2) | The Generalized Anxiety Disorder 2 (GAD-2) is an initial screening tool for generalized anxiety disorder. |
Core - Adult & Pediatric | Anxiety | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Generalized Anxiety Disorder 2 (GAD 2) | The Generalized Anxiety Disorder 2 (GAD-2) is an initial screening tool for generalized anxiety disorder. |
Core - Adult & Pediatric | Anxiety | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Brief Pain Inventory (BPI) Pain Severity subscale - 7 day recall | The Brief Pain Inventory (BPI) pain severity subscale assess the severity of the participants pain in the past 7 days. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish | No |
|
| Brief Pain Inventory (BPI) Pain Severity subscale - 7 day recall | The Brief Pain Inventory (BPI) pain severity subscale assess the severity of the participants pain in the past 7 days. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish | No |
|
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No |
|
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No | |
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No | |
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No | |
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No | |
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No | |
| Brief Pain Inventory (BPI) Pain Severity Subscale - 24 hour recall | The Brief Pain Inventory (BPI) pain severity questions assess the severity of the participants pain in the past 24 hours. |
Core - Adult & Pediatric | Pain Intensity | English, Spanish, Korean, Japanese, Simplified Chinese, Swedish, Traditional Chinese | No | |
| Brief Pain Inventory (BPI) - Pain Interference subscale | The Brief Pain Inventory (BPI) pain interference subscale assess the impact of pain on daily functions. |
Core - Adult & Pediatric | Pain Interference | English | Yes |
|
| Adolescent Sleep Wake Scale 10 (ASWS 10) | The Adolescent Sleep Wake Scale 10 (ASWS-10) measures pediatric participants sleep behaviors and patterns. |
Core - Pediatric | Sleep | English, Spanish | No |
|
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