Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | Copyright | CDE Files |
|---|---|---|---|---|---|---|
| Adolescent Sleep Wake Scale 10 (ASWS 10) | The Adolescent Sleep Wake Scale 10 (ASWS-10) measures pediatric participants sleep behaviors and patterns. |
Core - Pediatric | Sleep | English, Spanish | No |
|
| PedsQL - 23 | The PedsQL Inventory measures the health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. |
Core - Pediatric | Physical Functioning | English, Spanish | Yes |
|
| PedsQL - 23 | The PedsQL Inventory measures the health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. |
Core - Pediatric | Physical Functioning | English, Spanish | Yes |
|
| Pain, Enjoyment of Life and General Activity (PEG) | The Pain, Enjoyment of Life and General Activity (PEG) scale is used for quickly assessing and monitoring chronic pain. |
Core - Adult | Pain Intensity | English, Spanish, Swedish | No |
|
| Pain, Enjoyment of Life and General Activity (PEG) | The Pain, Enjoyment of Life and General Activity (PEG) scale is used for quickly assessing and monitoring chronic pain. |
Core - Adult | Pain Intensity | English, Spanish, Swedish | No |
|
| Pain, Enjoyment of Life and General Activity (PEG) | The Pain, Enjoyment of Life and General Activity (PEG) scale is used for quickly assessing and monitoring chronic pain. |
Core - Adult | Pain Intensity | English, Spanish, Swedish | No | |
| Patient Global Impression of Change (PGIC) | The Patient Global Impression of Change (PGIC) measures the change of a participant's condition over a certain amount of time. |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Polish, Swedish | No |
|
| Patient Global Impression of Change (PGIC) | The Patient Global Impression of Change (PGIC) measures the change of a participant's condition over a certain amount of time. |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Polish, Swedish | No |
|
| Patient Global Impression of Change (PGIC) | The Patient Global Impression of Change (PGIC) measures the change of a participant's condition over a certain amount of time. |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Polish, Swedish | No | |
| Patient Global Impression of Change (PGIC) | The Patient Global Impression of Change (PGIC) measures the change of a participant's condition over a certain amount of time. |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Polish, Swedish | No | |
| Patient Global Impression of Severity (PGIS) | The Patient Global Impression of Severity (PGIS) measures the severity of a specific condition (a single-state scale). |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Arabic, Somali | No |
|
| Patient Global Impression of Severity (PGIS) | The Patient Global Impression of Severity (PGIS) measures the severity of a specific condition (a single-state scale). |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Arabic, Somali | No |
|
| Patient Global Impression of Severity (PGIS) | The Patient Global Impression of Severity (PGIS) measures the severity of a specific condition (a single-state scale). |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Arabic, Somali | No | |
| Patient Global Impression of Severity (PGIS) | The Patient Global Impression of Severity (PGIS) measures the severity of a specific condition (a single-state scale). |
Core - Adult & Pediatric | Global Satisfaction with Treatment | English, Spanish, Arabic, Somali | No | |
| Patient Health Questionnaire 2 (PHQ 2) | The Patient Health Questionnaire 2 (PHQ-2) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Core - Adult & Pediatric | Depression | English, Spanish, Arabic, Polish, Somali, Swedish | No |
|
| Patient Health Questionnaire 2 (PHQ 2) | The Patient Health Questionnaire 2 (PHQ-2) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Core - Adult & Pediatric | Depression | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Patient Health Questionnaire 2 (PHQ 2) | The Patient Health Questionnaire 2 (PHQ-2) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Core - Adult & Pediatric | Depression | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Patient Health Questionnaire 2 (PHQ 2) | The Patient Health Questionnaire 2 (PHQ-2) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Core - Adult & Pediatric | Depression | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Patient Health Questionnaire 2 (PHQ 2) | The Patient Health Questionnaire 2 (PHQ-2) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Core - Adult & Pediatric | Depression | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Patient Health Questionnaire 2 (PHQ 2) | The Patient Health Questionnaire 2 (PHQ-2) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Core - Adult & Pediatric | Depression | English, Spanish, Arabic, Polish, Somali, Swedish | No | |
| Patient Health Questionnaire 8 (PHQ 8) | The Patient Health Questionnaire 8 (PHQ-8) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Swedish | No |
|
| Patient Health Questionnaire 8 (PHQ 8) | The Patient Health Questionnaire 8 (PHQ-8) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Swedish | No |
|
| Patient Health Questionnaire 8 (PHQ 8) | The Patient Health Questionnaire 8 (PHQ-8) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Swedish | No | |
| Patient Health Questionnaire 8 (PHQ 8) | The Patient Health Questionnaire 8 (PHQ-8) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Swedish | No | |
| Patient Health Questionnaire 9 (PHQ-9) | The Patient Health Questionnaire 9 (PHQ-9) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Arabic, Somali, Swedish | No |
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