Common Data Elements (CDEs) Repository
Helping to End Addiction Long-term® Initiative
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s Common Data Elements (CDEs) program aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Instrument Name | Description | CDE Category | Research Topic | File Languages | Copyright | CDE Files |
|---|---|---|---|---|---|---|
| Patient Health Questionnaire 9 (PHQ-9) | The Patient Health Questionnaire 9 (PHQ-9) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Arabic, Somali, Swedish | No |
|
| Patient Health Questionnaire 9 (PHQ-9) | The Patient Health Questionnaire 9 (PHQ-9) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Arabic, Somali, Swedish | No | |
| Patient Health Questionnaire 9 (PHQ-9) | The Patient Health Questionnaire 9 (PHQ-9) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Arabic, Somali, Swedish | No | |
| Patient Health Questionnaire 9 (PHQ-9) | The Patient Health Questionnaire 9 (PHQ-9) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Arabic, Somali, Swedish | No | |
| Patient Health Questionnaire 9 (PHQ-9) | The Patient Health Questionnaire 9 (PHQ-9) measures the frequency of depressed mood and anhedonia over the past two weeks. |
Supplemental | Depression | English, Spanish, Traditional Chinese, Arabic, Somali, Swedish | No | |
| PROMIS Physical Function 6b | The PROMIS Physical Function 6b assesses physical function through a grading scale of daily living activities. |
Core - Adult | Physical Functioning | English, Spanish | No |
|
| PROMIS Physical Function 6b | The PROMIS Physical Function 6b assesses physical function through a grading scale of daily living activities. |
Core - Adult | Physical Functioning | English, Spanish | No |
|
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish | No |
|
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish | No |
|
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish | No | |
| PROMIS Sleep Disturbance 6a | The PROMIS Sleep Disturbance 6a scale is composed of 6 items developed to assess the domain of sleep disturbances in the past 7 days. |
Core - Adult | Sleep | English, Spanish, Polish, Swedish | No | |
| Sleep Duration Question | The Sleep Duration question measures the average amount of sleep the participant slept each night, in the past month. |
Core - Adult & Pediatric | Sleep | English, Spanish, Somali, Swedish, Arabic | No |
|
| Sleep Duration Question | The Sleep Duration question measures the average amount of sleep the participant slept each night, in the past month. |
Core - Adult & Pediatric | Sleep | English, Spanish, Somali, Swedish, Arabic | No | |
| Sleep Duration Question | The Sleep Duration question measures the average amount of sleep the participant slept each night, in the past month. |
Core - Adult & Pediatric | Sleep | English, Spanish, Somali, Swedish, Arabic | No | |
| Sleep Duration Question | The Sleep Duration question measures the average amount of sleep the participant slept each night, in the past month. |
Core - Adult & Pediatric | Sleep | English, Spanish, Somali, Swedish, Arabic | No | |
| Sleep Duration Question | The Sleep Duration question measures the average amount of sleep the participant slept each night, in the past month. |
Core - Adult & Pediatric | Sleep | English, Spanish, Somali, Swedish, Arabic | No | |
| Tobacco, Alcohol, Prescription medications, and other Substance 1 (TAPS 1) | The Tobacco, Alcohol, Prescription medications, and other Substance (TAPS) Tool measures the participants tobacco use, alcohol use, prescription medication misuse, and illicit substance use in the past year. |
Core - Adult | Substance Use | English, Spanish, Swedish | No |
|
| Tobacco, Alcohol, Prescription medications, and other Substance 1 (TAPS 1) | The Tobacco, Alcohol, Prescription medications, and other Substance (TAPS) Tool measures the participants tobacco use, alcohol use, prescription medication misuse, and illicit substance use in the past year. |
Core - Adult | Substance Use | English, Spanish, Swedish | No |
|
| Tobacco, Alcohol, Prescription medications, and other Substance 1 (TAPS 1) | The Tobacco, Alcohol, Prescription medications, and other Substance (TAPS) Tool measures the participants tobacco use, alcohol use, prescription medication misuse, and illicit substance use in the past year. |
Core - Adult | Substance Use | English, Spanish, Swedish | No | |
| World Health Organization Quality of Life (QOL) | The World Health Organization Quality of Life (QOL) 2 item assesses quality of life and satisfaction of health. |
Core - Adult & Pediatric | Quality of Life | English, Spanish, Somali, Arabic, Traditional Chinese | No |
|
| World Health Organization Quality of Life (QOL) | The World Health Organization Quality of Life (QOL) 2 item assesses quality of life and satisfaction of health. |
Core - Adult & Pediatric | Quality of Life | English, Spanish, Somali, Arabic, Traditional Chinese | No | |
| World Health Organization Quality of Life (QOL) | The World Health Organization Quality of Life (QOL) 2 item assesses quality of life and satisfaction of health. |
Core - Adult & Pediatric | Quality of Life | English, Spanish, Somali, Arabic, Traditional Chinese | No | |
| World Health Organization Quality of Life (QOL) | The World Health Organization Quality of Life (QOL) 2 item assesses quality of life and satisfaction of health. |
Core - Adult & Pediatric | Quality of Life | English, Spanish, Somali, Arabic, Traditional Chinese | No | |
| World Health Organization Quality of Life (QOL) | The World Health Organization Quality of Life (QOL) 2 item assesses quality of life and satisfaction of health. |
Core - Adult & Pediatric | Quality of Life | English, Spanish, Somali, Arabic, Traditional Chinese | No | |
| Adult Demographics | The Adult Demographics measure background information on adult participants. |
Core - Adult | Demographics | English, Spanish | No |
|
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