Common Data Elements (CDEs) Repository

Common Data Elements (CDEs) Repository

The NIH HEAL Initiative’s  aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.

HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.

The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.

Description Core or Supplemental Research Topic CDE Files

The Alcohol Use Disorders Identification Test (AUDIT) Interview is a clinician administered questionnaire to assess alcohol consumption, drinking behaviors, and alcohol-related problems.

Supplemental Substance Use

The Addiction Behaviors Checklist (ABC) tracks behavior characteristics of addiction related to prescription opioid medications in chronic pain.

Supplemental Substance Use

The Brief Fatigue Inventory (BFI) is used to assess the severity and impact of fatigue, including cancer-related fatigue.

Supplemental Fatigue

The Tobacco, Alcohol, Prescription medication, and other Substance Use 2 (TAPS 2) identifies specific substance(s) use and risk level, ranging in severity from problem use to the more severe substance use disorder.

Supplemental Substance Use

The Timeline Follow Back (TLFB) 90 days is used as a clinical and research tool to obtain a variety of quantitative estimates of marijuana, cigarette, and other drug use over a 90-day period.

Supplemental Substance Use

The Timeline Follow Back (TLFB) is used as a clinical and research tool to obtain a variety of quantitative estimates of marijuana, cigarette, and other drug use over a 7-day period.

Supplemental Substance Use

The Stages of Change Readiness and Treatment Eagerness Scale (SOCRATES) to assess motivation for change in problem drinkers.

Supplemental Substance Use

The PROMIS Severity of Substance Use 7a (Past 30 days) measures the severity of a subject's substance abuse behavior over the past 30 days.

Supplemental Substance Use

The PROMIS Prescription Pain Med Misuse 7a measures subjects prescription pain medication misuse behavior in the past three months.

Supplemental Substance Use

The PROMIS Pediatric Anxiety SF 8a, is a self-report measure to assess a child's anxiety level over the past 7 days.

Supplemental Anxiety

The PROMIS Appeal of Substance Use 7a measures a person's positive appeal of substance use.

Supplemental Substance Use

The Mini International Neuropsychiatric Interview (Mini Cog) tool identifies people who might have clinically important, but unrecognized, cognitive impairment.

Supplemental Memory

The Ocular Pain Assessment Survey (OPAS) measures ocular pain and quality of life.

Supplemental Ocular Pain

The Keele STarT Back Screening Tool is a brief questionnaire aimed at screening prognostic indicators in patients with low back pain.

Supplemental Low Back Pain

The Oswestry Low Back Pain Disability Questionnaire (ODI) measures a patient's permanent functional disability.

Supplemental Low Back Pain

The Roland Morris Low Back Pain and Disability Questionnaire (RMDQ) assesses self-rated physical disability caused by low back pain.

Supplemental Low Back Pain

The Medication Adherence Rating Scale (MARS) is a 10-item self-report measure of medication adherence in psychosis.

Supplemental Medication

The Medication Adherence Rating Scale 5 (MARS 5) is a 5-item self-report measure of medication adherence in psychosis.

Supplemental Medication

The Microbiome Study Bristol Stool Chart classifies feces into seven groups. It is used in both clinical and experimental fields.

Supplemental Microbiome

The Cognitive and Affective Mindfulness Scale Revised (CAMS R) measures the degree to which individuals experience their thoughts and feelings and does not require meditation training.

Supplemental Mindfulness

The Applied Mindfulness Process Scale (AMPS) measures the frequency with which people use various mindfulness approaches to cope with daily stressors.

Supplemental Mindfulness

The PROMIS Alcohol Use 7a assesses a subject's problem drinking behavior.

Supplemental Substance Use

The NIDA ASSIST ADA modified Levels 1 and 2 measures risky substance use in adult patients.

Supplemental Substance Use

The Neck Disability Index (NDI) is a self-report questionnaire used to determine how neck pain affects a patient's daily life and to assess the self-rated disability of patients with neck pain.

Supplemental Neck Pain

The Glasgow Coma Scale (GCS) is used to objectively describe the extent of impaired consciousness in all types of acute medical and trauma patients.

Supplemental Neurological Assessments

This page last reviewed on