Common Data Elements (CDEs) Repository

Common Data Elements (CDEs) Repository

The NIH HEAL Initiative’s  aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.

HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.

The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.

Description Core or Supplemental Research Topic CDE Files

The Applied Mindfulness Process Scale (AMPS) measures the frequency with which people use various mindfulness approaches to cope with daily stressors.

Supplemental Mindfulness

The PROMIS Nociceptive Pain Quality 5a is a self-administered questionnaire assessing 5 descriptors of nociceptive pain quality, with a recall period of the past 7 days.

Supplemental Nociceptive Pain

PainDETECT is a self-reported assessment of pain qualities developed as a screening tool for pain of neuropathic origin.

Supplemental Neuropathic Pain

The Neuropathic Pain Symptom Inventory (NPSI) evaluates the different symptoms of neuropathic pain.

Supplemental Neuropathic Pain

The PROMIS Neuropathic Pain Quality 5a is a self-administered questionnaire for individuals aged 18 years and older, assessing 5 descriptors of neuropathic pain quality, with a recall period of the past 7 days.

Supplemental Neuropathic Pain

The Neuropathic Pain 4 Questions (DN4) is a screening tool for neuropathic pain consisting of interview questions and examination tests.

Supplemental Neuropathic Pain

The Leeds Assessment of Neuropathic Symptoms and Signs (LANSS) pain scale is an assessment tool to analyze and classify pain.

Supplemental Neuropathic Pain

The Rey Auditory Verbal Learning Test (RAVLT) measures a person's ability to encode, combine, store and recover verbal information in different stages of immediate memory.

Supplemental Neurological Assessments

The Neurobehavioral Symptom Inventory (NSI) measures post-concussion symptoms following a traumatic brain injury (TBI).

Supplemental Neurological Assessments

The PROMIS Parent Proxy Pain Behavior is a parent report measure that assesses behaviors that typically indicate to others that a child is experiencing pain.

Supplemental Pain Behavior

The Face, Legs, Activity, Cry, Consolability scale (FLACC) is a behavioral pain assessment scale used for nonverbal or preverbal patients who are unable to self-report their level of pain.

Supplemental Pain Behavior

The PROMIS Item Bank v2.0 Pain Behavior measures self-reported external manifestations of pain.

Supplemental Pain Behavior

The PROMIS Item Bank v1.0 Pain Behavior measures self-reported external manifestations of pain.

Supplemental Pain Behavior

The Chronic Pain Acceptance Questionnaire Revised 8 item (CPAQ) is an 8-item instrument to measure acceptance of pain.

Supplemental Pain Acceptance

The Chronic Pain Acceptance Questionnaire Revised (CPAQ) is a 20-item instrument to measure acceptance of pain.

Supplemental Pain Acceptance

The Chronic Pain Acceptance Questionnaire for Adolescents 8 item (CPAQ A8) measures acceptance of pain in adolescents.

Supplemental Pain Acceptance

The Ocular Surface Disease Index (OSDI) is a 12-item scale for the assessment of symptoms related to dry eye disease and their effect on vision.

Supplemental Ocular Pain

The PROMIS Pain Interference SF 6a is a self-reported measure that assesses how pain interferes with one's daily life activities.

Supplemental Pain Interference

The PROMIS Pain Interference SF 8a is a self-reported measure that assesses how pain interferes with ones daily life activites.

Supplemental Pain Interference

The PROMIS Pediatric Item Bank v2.0 Pain Behavior measures self-reported external manifestations of pain in children.

Supplemental Pain Behavior

The Arthritis Self-Efficacy Scale (ASES) is a self-report measure of beliefs reflecting confidence in one's capacity to function despite pain and control pain or other symptoms of arthritis.

Supplemental Pain Intensity

The Faces Pain Revised (FPS R) is a self-report measure to assess pain intensity in children.

Supplemental Pain Intensity

The Graded Chronic Pain Scale-Revised (GCPS-R) identifies persons with chronic pain and grades chronic pain severity (mild, bothersome, high impact chronic pain).

Supplemental Pain Intensity

The Pain Visual Analog Scale (VAS) Numeric Rating Scale (NRS) is a subjective measure for acute and chronic pain. When using an NRS, the patient indicates the number that corresponds to pain severity, either verbally or by marking the scale.

Supplemental Pain Intensity

The Faces Visual Analog Scale (VAS) is a subjective measure for acute and chronic pain. When using an NRS, the patient indicates the number that corresponds to pain severity, either verbally or by marking the scale.

Supplemental Pain Intensity

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