Common Data Elements (CDEs) Repository

Common Data Elements (CDEs) Repository

The NIH HEAL Initiative’s  aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.

HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.

The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.

Description Core or Supplemental Research Topic CDE Files

The PROMIS Pain Intensity 1a measures the severity of pain over the past 7 days in the pediatric population.

Supplemental Pain Intensity

The Faces Visual Analog Scale (VAS) is a subjective measure for acute and chronic pain. When using an NRS, the patient indicates the number that corresponds to pain severity, either verbally or by marking the scale.

Supplemental Pain Intensity

The Pain Visual Analog Scale (VAS) Numeric Rating Scale (NRS) is a subjective measure for acute and chronic pain. When using an NRS, the patient indicates the number that corresponds to pain severity, either verbally or by marking the scale.

Supplemental Pain Intensity

The Ocular Surface Disease Index (OSDI) is a 12-item scale for the assessment of symptoms related to dry eye disease and their effect on vision.

Supplemental Ocular Pain

The Rapid Assessment of Physical Activity (RAPA) is a 9-item questionnaire developed to measure the amount, type, and intensity of habitual PA participation among older adults.

Supplemental Physical Activity

The 30 Second Chair Stand Assessment tests leg strength and endurance in older adults.

Supplemental Physical Functioning

The PROMIS Pediatric Bank Pain Interference is a self-reported measure that assesses how pain interferes with one's daily life activities.

Supplemental Pain Interference

The Psychological Inflexibility in Pain Scale (PIPS) is a 16-item scale used to assess psychological inflexibility (i.e. avoidance, acceptance, fusion, values orientation).

Supplemental Pain Interference

The Pediatric Pain Screening Tool (PPST) assesses physical and psychosocial symptomatology in youth with chronic pain.

Supplemental Pain Interference

The Brief Pain Inventory Long Form (BPI LF) assesses the severity of pain and the impact of pain on daily functions.

Supplemental Pain Quality

The Brief Pain Inventory (BPI SF) assesses the severity of pain and the impact of pain on daily functions.

Supplemental Pain Quality

The McGill Pain Questionnaire Short Form (MPQ SF) assesses both the intensity and quality of pain.

Supplemental Pain Quality

The McGill Pain Questionnaire Short Form Version 2 (MPQ SF 2) provides a comprehensive measure of pain symptoms of both neuropathic and non-neuropathic pain conditions.

Supplemental Pain Quality

The PROMIS Pediatric Pain Quality Sensory SF 8a is a self-administered pain quality survey for 8 to 17 year olds, assessing 8 descriptors of sensory pain quality, across 5 severity anchors, with a recall period of the past 7 days.

Supplemental Pain Quality

The Parents' Postoperative Pain Management Pain Scale (PPPM) is a 15-item instrument to measure a child's pain at home.

Supplemental Pain Intensity

The PROMIS Emotional Distress Anxiety SF 8a assess self-reported fear (fearfulness, panic), anxious misery (worry, dread) and hyperarousal (tension, nervousness, restlessness).

Supplemental Anxiety

The Wong-Baker Faces Pain Rating Scale is a tool that uses a combination of faces, numbers, and words to help a person effectively communicate the severity of their physical pain.

Supplemental Pain Intensity

The PROMIS Pain Interference SF 4a is a self-reported measure that assesses how pain interferes with one's daily life activities.

Supplemental Pain Interference

The PROMIS Physical Function CAT measures self-reported capability rather than actual performance of physical activities.

Supplemental Physical Functioning

The Short Physical Performance Battery (SPPB) is an objective measurement instrument of balance, lower extremity strength, and functional capacity in older adults.

Supplemental Physical Functioning

The PROMIS Upper Extremity SF 7a measures functionality by asking questions about the patient's ability to carry objects or reach different body parts.

Supplemental Biomechanics

The Adult Responses to Children's Symptoms (ARCS) - Protect Subscale measures adults protective behaviorism response to children's pain.

Supplemental Protective Factors

The Altarum Consumer Engagement (ACE) survey tool measures three domains (commitment, informed choice, navigation) of patient engagement.

Supplemental Protective Factors

The Gratitude Questionnaire 6 item (GQ-6) is a self-report questionnaire designed to assess individual differences in one's disposition to experience gratitude in daily life.

Supplemental Protective Factors

The Life Orientation Test Revised (LOT R) is a psychological instrument that assesses one's dispositional level of optimism.

Supplemental Protective Factors

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