Common Data Elements (CDEs) Repository
Common Data Elements (CDEs) Repository
The NIH HEAL Initiative’s aims to harmonize the data collected by the initiative’s studies, enhancing the comparability of various data sets generated by HEAL research.
HEAL researchers and potential applicants conducting research with human participants should also prioritize using the HEAL CDEs. Researchers outside the HEAL Initiative conducting pain research may also be interested in using validated and structured questionnaires.
The 'core' questionnaires in ten domains, demographic information, and opioid usage are required for the human subjects in pain HEAL grants and are organized depending on the type of pain and population being studied.
| Description | Core or Supplemental | Research Topic | CDE Files |
|---|---|---|---|
The PROMIS Ability to Participate in Social Roles and Activities SF 4a measures satisfaction with performing one's usual social roles and activities. |
Supplemental | Physical Functioning |
|
The PROMIS Ability to Participate in Social Roles and Activities SF 8a measures satisfaction with performing one's usual social roles and activities. |
Supplemental | Physical Functioning |
|
The PROMIS Instrumental Support 6a is a self-reported measure to assess assistance with material, cognitive or task performance. |
Supplemental | Physical Functioning |
|
The PROMIS Instrumental Support 8a is a self-reported measure to assess assistance with material, cognitive or task performance. |
Supplemental | Physical Functioning |
|
The PROMIS Mobility Item Bank is an item bank to assess a dimension of physical functioning. |
Supplemental | Physical Functioning |
|
The Multidimensional Assessment of Interoceptive Awareness Version 2 (MAIA-2) is an 8-subscale state-trait self-report questionnaire to measure multiple dimensions of interoception. The MAIA-2 is suitable for adults (18+) and has 37 items. |
Supplemental | Pain Symptom and Assessment |
|
The Big Five Inventory 10 (BFI 10) is a 10-item scale measuring the Big Five personality traits Extraversion, Agreeableness, Conscientiousness, Emotional Stability, and Openness. The scale was developed based on the 44-item Big Five Inventory. |
Supplemental | Personality |
|
The Big Five Inventory 2 (BFI 2) is a scale measuring the Big Five personality traits Extraversion, Agreeableness, Conscientiousness, Emotional Stability, and Openness. The scale was developed based on the 44-item Big Five Inventory. |
Supplemental | Personality |
|
The NEO Personality Inventory 3 (NEO-PI-3) is a comprehensive measure of the five major domains of personality (Neuroticism, Extraversion, Openness to Experience, Agreeableness, and Conscientiousness) and the six facets that define each domain. |
Supplemental | Personality |
|
The International Physical Activity Questionnaire long form (IPAQ LF) was developed for adults aged 18 to 65 years with the aim to assess population levels of physical activity across countries. |
Supplemental | Physical Activity |
|
The International Physical Activity Questionnaire short form (IPAQ SF) was developed for adults aged 18 to 65 years with the aim to assess population levels of physical activity across countries. |
Supplemental | Physical Activity |
|
The Client Satisfaction Questionnaire (CSQ) assesses consumer satisfaction with health and human services including governmental and public benefit programs and services. |
Supplemental | Satisfaction |
|
The Domain Specific Life Satisfaction Ages 18+ Fixed Form assesses one's cognitive evaluation of life experiences and is concerned with whether people like their lives or not. |
Supplemental | Satisfaction |
|
The Mobile Application Rating Scale (MARS) evaluates the quality of mobile health applications. |
Supplemental | Satisfaction |
|
The Pain Outcomes Questionnaire (POQ) is a multidimensional treatment outcomes measure that assesses specific aspects of pain syndromes. |
Supplemental | Satisfaction |
|
The PROMIS Positive Affect 15a is a 15-item tool to assess happiness, serenity, and cognitive engagement of the person. |
Supplemental | Protective Factors |
|
The Self-Compassion Scale - Short Form (SCS-SF) is a 12-item self-report measure used by adults to measure their capacity for self-compassion (the ability to hold one's feelings of suffering with a sense of warmth, connection and concern). |
Supplemental | Protective Factors |
|
The PROMIS Psychosocial Illness Impact Negative 8a assesses the direct negative psychosocial effect of an illness, distinct from general emotional distress. |
Supplemental | Psychosocial Impact | |
The PROMIS Psychosocial Illness Impact Positive 8a assesses positive psychosocial (emotional and social) outcomes of illness. |
Supplemental | Psychosocial Impact | |
The Norfolk Quality of Life-Diabetic Neuropathy (QOL-DN) questionnaire is an instrument to assess QOL in diabetic polyneuropathy. |
Supplemental | Quality of Life |
|
The SF 8 Health Survey instrument measures health-related quality of life over the past 4 weeks. |
Supplemental | Quality of Life |
|
The World Health Organization Quality of Life Brief with Demographics and Administration Questions (WHOQOL-BREF) assesses quality of life (QOL) within the context of an individual's culture, value systems, personal goals, standards and concerns. |
Supplemental | Quality of Life |
|
The Patient Specific Functional Scale (PSFS) measures physical function in patients with musculoskeletal and non-musculoskeletal disorders. |
Supplemental | Physical Functioning |
|
The PROMIS Physical Function 4a is a 4 item self-reported capability rather than actual performance of physical activities. |
Supplemental | Physical Functioning |
|
The PROMIS Physical Function 8b is a 8 item self-reported capability rather than actual performance of physical activities. |
Supplemental | Physical Functioning |
|
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